Ames Tebele for Cure Canavan Fund
Please join me in the campaign to cure Benny (3 years old) and Josh (2 years old) Landsman who were born with Canavan disease, a fatal genetic brain disorder.
Jennie and Gary are fighting to raise the funds necessary for a phase 1 gene-therapy trial that has been green lit by the FDA in the hopes of saving their boys and 8 other Canavan children. They have founded the Cure Canavan Fund to achieve this goal and I am joining them in their efforts to raise $2.5 M by the end of the year…a deadline that must be reached in order to move ahead with the experimental treatment.
Please support my personal fundraising goal of $10,000 by making a donation for the cure!
Shana Tova and Thank You!